Tyla was FINALLY diagnosed with autism on September 25. I say "finally" because we have always known something was just not quite right with this sweet little girl. She didn't walk until she was almost 18 months old, she never jibber jabbered like a baby does, she never cries when she gets hurt, and she has MAJOR issues with loud noises and flashing lights. The list really can go on and on, but finally we have something to work with. She has been involved with the AZ Early Intervention Program for the last two years and it has helped tremendously! But just these last couple of weeks, she has come SOOOOOOOOOOO FAR!!! Last weekend, she was with me when I picked up her prescription from the pharmacy and asked for Tyla Allen's prescription. She heard me say this, and said "Ty-ya Al-yen!" She now says her whole name, "Ty-ya Paige Al-yen!!" over and over again! I love it. Also she has been VERY loving towards Jack. This is HUGE!!! We would consider it a good weekend if she was just not mean to him, if she just left him alone. Last weekend, Jack was crying and she walked up to him, put her arm around him and said, "OOh Jack!" It was sooo cute! And today, I was changing Jack's diaper and she came and layed on his belly and put her arm around him!
We are working really closely with her mom and step-dad to really be consistent with her care. We have her on the diet and supplements and we have noticed such a change in her. We are in the process of getting her into some additional speech and occupational therapy. We are just having some issues with insurance and we are trying to get approved with the state to possibly get state assistance with her therapies.
We have seriously prayed so hard for this little girl. Our hearts have been breaking not knowing what we should do for her, and now we FINALLY know!! It's still gonna be a long hard road, but at least we now know which road to take! I think that Heavenly Father has made Tyla special so she could remain innocent longer so He could keep her closer to Him. He knew she was gonna have a rough start to her little life and I KNOW He has been right beside her all along!! She has always had such a sweet spirit about her. She definitely brings the Spirit in our home. She is so special to us and we LOVE her SO much!!!
(On a side note, Tyla gets to say the prayer in Sharing Time next week. They asked me if she wanted to say a talk, scripture or prayer. I told them, since she doesn't really talk, WE'LL say the prayer :) Also, they are having their Primary Program next month and her Primary Pres (who used to be her sunbeam teacher) has made a special sign language part for Tyla to do. It's so touching that they care so much that they want to make sure she will be included!)
5 comments:
you sound like an amazing mother! that is also so great about her primary part :)
Hang in there...it will be a long road! It sounds like you guys are doing great and doing everything you can! She is lucky to have you:)
I definitely know how frustrating that is when you KNOW something just isn't quite right and then finally, after so long, it gets figured out. Keep being persistent with the State help stuff. Jordan was on that for speech/pt/ot since she was about 2 months old and they were going to continue it even after she turned 3 and Early intervention services stopped. MAKE them test her. YOU have to be the advocate. It's heart breaking that you know she can learn and get better with things but the help is SSSOOOO hard to get. Don't give up! And let Heavenly Father be there for you guys too. It's a tough fight and he'll help you through it. It'll be worth it in the end when you see how happy Tyla is and how well she does with everyday situations. Keep it up! =) And let me know if you need any suggestions or if you have any questions I might be able to answer =)
I am so extremely greatful that you and Matt have agreed to do the diet and supplements with Tyla. You will never know how much this means to me. I can already see a major improvement with her in such a short amount of time. please let me know if you have any questions or need recipes I have done so much research and have learned so much and totally believe we can get Tyla to recovery. Read Jenny's book I got you it is totally inspiring and gives so much hope to all parents out there who have children with Autism. I think it might help you with concerns you are having about Jack also. When you read her next book Mother Warriors you will hear all about DAN (Defeat Autism Now)that Jenny swears up and down that any parent who has a child with Autism must go to one of their conferences and it could save your childs life and future. They are having a conference in San Diego that Jeff and I are going to in a couple weeks. I am so excited (except for the cost). There are 9 DAN Doctors in Arizona.
I just want you to know that you are a wonderful step mother to Tyla and I really appreciate everything you do and have done for her. It means the world to me. Sorry for rambling on. Please let me know if you need anything.
Kristy
Oh yeah! Well- you know what I mean! I'm glad that you finally know what she has so that you can help her in the ways that she needs. I'm glad she has you lloking out for her.
Did I see "Joe" at the top of your page?? Cute!!!!
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